It’s hard to put a price on your health.
This is especially true when you are dealing with a debilitating illness such as Lyme Disease that can take a normal, healthy human being and leave them bedridden. Anyone who has suffered with this illness knows how complex, confusing and costly Lyme Disease treatment can be.
In today’s post, I will be sharing some of my personal story with this disease, as well as links to articles and other peoples stories that show what the financial burden can look like in order to treat this infection.
I want to give a disclaimer:
This article is meant to be slightly overwhelming..but please stick with me until the end! Lyme disease is vastly under-diagnosed, often mistreated and downright complicated to navigate. I hope to show you how complex and confusing it can be to find options to treat this illness. But I won’t leave you hanging there, I promise!
I will share with you the complexities, and financial burden of my own journey, and how I found treatment in the least likely of places, for a very affordable price.
“Life is deep and simple, and what our society gives us is shallow and complicated.”
My Journey-100’s of hours, 1000s of dollars
When I first became symptomatic, I was hoping for an easy answer. Was it just stress? Diet? Anxiety? Little did I know I would be starting a long and costly journey to find answers.
I have to admit: ever since I was young I have always been a bit of a hypochondriac. (A person who is abnormally anxious about their health, often focusing on every new body sensation and assuming the worst)
You can imagine how busy my mind was when the symptoms began to pile up one after the other. It started with persistent muscle fatigue. After a visit to the doctor I was convinced that I was going to die of muscular dystrophy. After an array of tests and a visit to a highly specialized neuro-muscular physician, I was told that there wasn’t an explanation and that I was fine.
Then came unusual anxiety: like waking up in the morning shaking horribly kind of anxiety. Around this same time I experienced bouts of EXTREME fatigue, jaw tightness, blurred vision, general malaise, numbing and tingling.
After a visit to the neurologist I was told to start considering how my life might change if I was diagnosed with MS. This freaked me out as I have a family history of MS. A trip to the hospital and an MRI showed slight brain lesions, but nothing to worry about.
Shortly after this my doctor told me that everything I was experiencing was a symptom of depression. I walked out the door with a prescription for an anti-depressant.
Shortly after, I began to feel a true, deep, dark depression for the first time in my life. Then came crazy INSOMNIA. Like my brain forgot how to sleep. I didn’t sleep a wink for 3 days and 3 nights before I succumbed to a prescription of sleeping pills.
By this time I was in full-blown research mode. I had to take my health into my own hands. What I found online was overwhelming to say the least. After looking into my symptoms I found pages and pages of info on Candida, Mold Toxicity, Parasites, Lyme Disease, Adrenal Fatigue and on and on and on.
I began to take a stab in the dark and purchase supplements and herbs that I thought might help do something. I drastically changed my diet. No matter what I did, my situation got worse. I began to experience extreme brain fog and short term memory loss. Could this be a side effect of my medications? Am I developing some sort of early adulthood dementia?
As my research continued, I began to narrow in on studying Lyme disease. The information was overwhelming and largely conflicting. It seemed that no 2 medical professionals could agree on Lyme disease. When I brought the topic up to my family physician, he said that there was still a lot of research to be done and that I could send my blood in to the center for disease control but that it would come back negative.
At this point I was unable to work. This is an often overlooked financial burden to those struggling with Lyme Disease. Besides the cost of blood work and treatment, there is the lost income potential as many suffers are only able to work part-time or not at all.
Before I began to entertain the possibility of Lyme disease and seek treatment, the traditional medical route had funneled me into a purely psychiatric diagnosis. At my lowest point I was hospitalized in a psychiatric unit for 30 days. I felt like I was going insane. I didn’t know that depression and insomnia this bad existed. When I walked out of the hospital after 30 days, I was on a cocktail of medications that I was paying all out-of-pocket.
- Zoplicone (for sleep)
- Temazepam (for sleep)
- Trazadone (for sleep)
- Effexor XR (Antidepressant)
- Seroquel (Low dose anti-psychotic to boost mood)
To share my entire story could fill a book, and I will save the rest of it for future posts and video uploads. I will say that when I did finally start to pursue the possibility of being infected with Lyme disease, the costs really added up.
- Up to $100/hr for every 30 minute phone consult with my naturopath
- hundreds of dollars a month on antibiotics and multiple herbal formulas
- blood work that was sent to a specialized laboratory in California (came back inconclusive)
- hundreds of dollars spent on supplements and detoxifying agents
- over $700 for an initial consult with another naturopath which included a few supplements to begin a new recommended herbal protocol
- close to $30 000 in debt from being unable to work for 14 months total
- Another $30 000 for a private addiction and wellness center. (addictions and suicidal ideation/actions was part of the collateral damage from my illness)
Common Treatment Options
Below I am going to outline many of the treatment options that people have utilized when treating Lyme and Co-Infections. If I’m being honest, I am showing you all the options in order to purposefully overwhelm you and show you how difficult and confusing it can be when navigating the healing process. But don’t get discouraged! Keep reading until the end and I promise I will take what appears to be complex and costly, and will offer you a solution that is simple, effective and affordable. Of course, I can not claim that what has worked for me will work for others, but I believe that my testimony can add some real value. Many people within the “Association of Natural Healing and Knowledge Sharing” have successfully treated themselves with a similar approach.
⇒Please note that this is an unbiased list. I am not promoting, nor am I discouraging anyone from these treatments or taking away from the success that some have had with these treatments.⇐
Stem Cell Therapy (www.nsistemcell.com/stem-cell-therapy/lyme-disease)
“Stem cell therapy involves harvesting stem cells from certain areas of the body- bone marrow, fat cells, skin cells, spinal fluid, and blood- and creating a concentrated slurry of stem cells. This slurry is then injected into the body in areas that need healing.”
Private Treatment Facilities (links chosen at random)
Rife Machine (www.royal-rife-machine.com)
-“A Rife machine is a research instrument invented by Dr. Royal Raymond Rife. A Rife machine is an electronic device which emits audio and/or radio waves applied in some fashion to an individual with the intent of bettering the individual’s health. The rate at which these waves are emitted is called ‘frequency’, which is measured in ‘hertz’, or cycles per second. They are used by experimenters (both practitioners and private users alike) to try to influence the body in making chemical changes.”
Hyperbaric Oxygen Therapy (www.oxyhealth.com/hyperbaric_therapy.html)
-“Hyperbaric oxygen therapy (HBOT) is the medical use of oxygen in a pressurized environment, at a level higher than 1 atmosphere absolute (ATA). Increased pressure allows for oxygen to dissolve and saturate the blood plasma (independent of hemoglobin/red blood cells), which yields a broad variety of positive physiological, biochemical and cellular effects. This noninvasive therapy is the most trusted way to increase oxygen levels to all organs of the body.”
Low Dose Naltrexone (www.treatlyme.net/guide/low-dose-naltexone-lyme-disease)
-“Naltrexone is an opioid receptor blocker. Narcotics, like oxycodone found in Percocet and hydrocodone found in Vicodin, are opioids. When they bind to an opioid receptor, narcotics regulate pain. Humans make natural narcotics called endorphins. These endorphins regulate pain and the immune system.
Low dose naltrexone (LDN) is “low” because it is used at much lower doses than physicians used to treat people with narcotic addictions (or overdose) and alcoholism. It is manufactured only as a 50 mg pill. When it is used to regulate the immune system, it is dosed at 1.5 to 4.5 mg a day.”
-“A non-invasive procedure in which the bodies core temperature is raised slowly, over the course of many hours, to approximately 106-107F. The whole process can take about 7-8 hours. When used correctly, the bodies immunological defense mechanisms will become activated, along with its natural killer cells, allowing the Lyme bacteria (Borrelia burgdorferi) to be more easily eliminated. In addition, the bacteria is unable to withstand temperatures that high and will naturally begin to die as the temperature in the body rises. Hyperthermia is inducing your whole body into a fever state to kickstart your bodies own ability to heal itself.”
Ozone Therapy (www.whatislyme.com/ozone-therapy)
-“Ozone therapy is a form of alternative medicine treatment which to increases the amount of oxygen to the body through the introduction of ozone into the body. There are various methods for doing this. Ozone therapy consists of the introduction of ozone into the body via various methods, usually involving mixing of the ozone with various gases and liquids and injecting this into the body, including the intramuscular, subcutaneously, or intravenously or via autohemotherapy, in which blood is drawn from the patient, exposed to ozone and re-injected into the patient”
Bee Venom Therapy (www.lymewarrior.us/bee-venom-therapy)
-“Using venom from live bees is commonly referred to as bee venom therapy. The full treatment consists of getting stung by 10 live honey bees, 3 times per week. One must start with one “test” sting and then slowly work up to the full treatment dose of 10 stings very slowly over the course of several weeks.”
Complex Herbal Protocols
Buhner Herbal Protocol (www.buhnerhealinglyme.com)
1. Japanese knotweed root
• Powder: 1 tsp – 1 TBS of the root powder 3x daily. Start at the lower dose and work up, OR . . .
• Tincture: ¼ – 1 tsp 3-6x daily, OR . . .
2. Cat’s claw bark (Uncaria tomentosa)
• Powder: 1 tsp 3x daily, OR . . .
• Tincture: ¼ – ½ tsp 3x daily, OR . . .
• Capsules: 600 mg (1 capsule) 3x daily to begin with, for one week. Then, if there are no side effects, increase the dose to 2 capsules 3x daily.
4. If you have neuroborrelliosis, add: Gou-Teng
• Tincture: ½ – 1 tsp 3–6x daily, depending on severity of brain infection.
5. Collagen support protocols
Sida acuta- ¼ tsp 3x daily (tincture)
Alchornea cordifolia- ¼ tsp 3x daily (tincture)
Cryptolepis- ¼ tsp 3x daily (tincture)
Sida acuta tincture ¼ tsp 3x day for 30 days
Hawthorn tincture ¼ tsp 3x day for 30 days
Japanese knotweed ¼ tsp 3x day for 30 days
EGCG 400mg daily
Houttuynia 1 tbs daily
L-arginine 5000 mg daily in divided doses
Milk Thistle seed, standardized, 1200 mg daily
All for 30 days.
Cowden Protocol (www.nutramedix.com/shop/cowden-support-program)
9 Month Protocol that is repeated until symptoms subside. 14 products total, with about 10 being utilized in each months program.
-Banderol – Microbial Defense
-Burbur-Pinella – Detox
-Parsley – Detox
-Samento – Microbial Defense
-Sealantro – Metal Detox
-Sparga – Sulphur Detox
-Stevia – Sweet Herb
-Takuna – Microbial Defense
-Houttuynia – Microbial Defense
-Mora – Microbial Defense
-Enula – Microbial Defense
-Cumanda – Microbial Defense
-Binding agents (chlorella, activated charcoal, bentonite clay)
-dry skin brushing
-epsom salts baths
Although Lyme Disease & Co-Infections are an extremely complicated illness, our approach to wellness doesn’t have to be. In its simplest form, there are 4 crucial components to putting this disease into remission:
- Alter diet to stop feeding bacteria
- Kill pathogens using multiple tools
- Manage die-off/detox
- Boost the Immune System
I have done a lot of research and collaboration and have done my best to present diagnostic tools and treatment options in a simple, powerful and affordable manner. The core protocol that I used and that we offer at Lyme Natural Healing costs less than $300/month and members in this association have found it to be effective against biofilms, all forms of the borellia bacteria as well as co-infections.